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Article History

Received: 27 May 2021

Accepted: 18 July 2021

First Online: 28 July 2021

Declarations

:

: The local ethics committees of all participating sites approved the study and all patients and controls signed written informed consent.

: Not applicable.

: MF reports non-financial support from Biogen outside the submitted work. PS has no conflicts of interest to declare that are relevant to the content of this article. CDW has received honoraria from Biogen as an advisory board member and for lectures and as a consultant and advisory board member from Hoffmann-La Roche. She also received travel expenses from Biogen. OSK received honoraria as a speaker/consultant and/or funding for travel expenses from the German Neuromuscular Society (Deutsche Gesellschaft fuer Muskelkranke, DGM e.V.), Novartis, Biogen GmbH, the Jain Foundation and Biermann Verlag GmbH; and research support from the DGM e.V. AO has received honoraria as speaker/consultant from Biogen. SP has received grants from the German Neuromuscular Society, the Federal Ministry of Education and Research, the German Israeli Foundation for Scientific Research and Development, and the EU Joint Programme for Neurodegenerative Disease Research; and other support from Cytokinetics, Desitin Pharma, Biogen, Novartis, and Teva outside of the submitted work. JCK has received payment for consultation and advisory board participation from Biogen, Hoffmann-La Roche and AveXis. KR has no conflicts of interest to declare that are relevant to the content of this article. BF has no conflicts of interest to declare that are relevant to the content of this article. ACL has received personal fees from AB Science, Biogen, Cytokinetics, GlaxoSmithKline, Orion Pharma, Novartis, Tau Rx Therapeutics, Teva, Mitsubishi, and Hoffmann-La Roche outside of the submitted work. MO has no conflicts of interest to declare that are relevant to the content of this article. AH has received honoraria from Biogen and Desitin as a consultant. RG has received honoraria from Biogen as an advisory board member and for lectures and as a consultant and advisory board member from Hoffmann-La Roche. He also received travel expenses and research support from Biogen.