Funding for this research was provided by:
biomarin pharmaceutical
Article History
Received: 8 August 2021
Accepted: 28 November 2021
First Online: 19 January 2022
Declarations
:
: Not applicable.
: Not applicable.
: ER and SW are employed by the RDRP, which supplies various professional services to BioMarin. AM is employed by the BDFA and was a trustee until December 2019. The BDFA has received grants from BioMarin for service development, support with public relations, raising awareness in the devolved nations of the UK, and a grant to support families with travel costs.