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Authors
Burke, Tom
Asghar, Sohaib https://orcid.org/0000-0001-8276-0131
O’Hara, Jamie
Chuang, Margaret
Sawyer, Eileen K.
Li, Nanxin
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Funding
Funding for this research was provided by:
uniQure Inc
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Article History
Received: 30 April 2021
Accepted: 6 December 2021
First Online: 20 December 2021
Declarations
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: This study was approved by the Research Ethics Sub Committee of the Faculty of Health and Social care within the University of Chester and conducted in correspondence with regional and relevant guidelines, in partnership with the National Hemophilia Foundation (NHF) in the United States. Consultative discussions regarding research design were held with the NHF to ensure relevance and adequacy of the research questions, objectives and methods. Patient consent for use of clinical data was not required (as per European Pharmaceutical Market Research Association (EPhMRA) guidelines). Patient consent was obtained via tick box selection for the patient-reported element of the study.
: Not applicable.
: The authors declare that they have no competing interests.
