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Fetal therapies and trials for lysosomal storage diseases: a survey of attitudes of parents and patients

Published Online: 2022-01-29

Published Print: 2022-12

Authors

Schwab, Marisa E. https://orcid.org/0000-0001-9217-1840
Brown, Julia E. H.

Lianoglou, Billie

Jin, Chengshi

Conroy, Patricia C.

Gallagher, Renata C.

Harmatz, Paul

MacKenzie, Tippi C.
Funding

Funding for this research was provided by:

NIH (T32AI125222)

UCSF Center for Maternal-Fetal Precision Medicine (TL1 TR001871)
License Information

Text and Data Mining valid from 2022-01-29

Version of Record valid from 2022-01-29
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Article History

Received: 16 August 2021

Accepted: 16 January 2022

First Online: 29 January 2022

Declarations

:

: The study was approved by the University of California San Francisco’s Institutional Review Board (IRB). Informed consent was obtained prior to respondents (patients and parents) accessing the survey.

: Informed consent was obtained prior to patients accessing the survey.

: The authors declare that they have no competing interests.

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