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Key patient-reported outcomes in children and adolescents with intoxication-type inborn errors of metabolism: an international Delphi-based consensus

Published Online: 2022-01-29

Published Print: 2022-12

Authors

Bösch, Florin

Zeltner, Nina A.

Baumgartner, Matthias R.

Huemer, Martina https://orcid.org/0000-0002-0590-678X
Landolt, Markus A.
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Article History

Received: 10 August 2021

Accepted: 16 January 2022

First Online: 29 January 2022

Declarations

:

: The usage of patient data in this study was in accordance with the ethical standards of the institutional and national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards. Patient data used in this study were all assessed and published based on informed consent.

: Not applicable.

: The authors of this manuscript declare no competing interests but disclose the following: M.R. Baumgartner reports a research fund from Nutricia and is a member of the clinical advisory boards of Hemoshear and Moderna. M. Huemer has received research grants from Nutricia Metabolics and consultancy honoraria from SOBI, Aeglea, Shire, Sanofi, and Orphan Europe. F. Bösch, M.A. Landolt and N.A. Zeltner report that they have nothing to disclose.

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