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Concordance between the schedule for the evaluation of individual quality of life-direct weighting (SEIQoL-DW) and the EuroQoL-5D (EQ-5D) measures of quality of life outcomes in adults with X-linked hypophosphatemia

Crossref DOI link: https://doi.org/10.1186/s13023-022-02250-8

Published Online: 2022-02-23

Published Print: 2022-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Jandhyala, Ravi https://orcid.org/0000-0002-7241-7476
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Text and Data Mining valid from 2022-02-23

Version of Record valid from 2022-02-23
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Article History

Received: 11 August 2021

Accepted: 13 February 2022

First Online: 23 February 2022

Declarations

:

: Ethical approval for this study was granted by Yorkshire and the Humber—Leeds East Research Ethics Committee REC reference: 19/YH/0205; IRAS project ID: 262281. All study participants provided informed consent, prior to commencing all study activities.

: Not applicable.

: The author is the Founder and CEO of Medialis Ltd, a medical affairs consultancy and contract research organisation involved in designing and delivering real-world evidence studies.

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