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Authors
Yang, Grace
Cintina, Inna
Pariser, Anne
Oehrlein, Elisabeth
Sullivan, Jamie
Kennedy, Annie http://orcid.org/0000-0002-0987-675X
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Funding
Funding for this research was provided by:
EveryLife Foundation for Rare Diseases
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Article History
Received: 3 November 2021
Accepted: 22 March 2022
First Online: 12 April 2022
Declarations
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: The study received an approval by the WCG New England Institutional Review Board (IRB). The survey instrument and consent form were reviewed by the IRB (IRB Tracking number 20201796).
: Survey participant consented to completion of online survey. All data reported are aggregated and no individual data are reported in the manuscript.
: The authors declare that they have no competing interests.
