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Authors
Benito-Lozano, Juan
López-Villalba, Blanca
Arias-Merino, Greta
Posada de la Paz, Manuel
Alonso-Ferreira, Verónica https://orcid.org/0000-0002-8560-1336
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Funding
Funding for this research was provided by:
Ministerio de Ciencia, Innovación y Universidades (PRE2019-091508)
Agencia Estatal de Investigación (RTI2018-094035-A-I00)
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Article History
Received: 28 February 2022
Accepted: 30 September 2022
First Online: 17 November 2022
Declarations
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: The Spanish Rare Diseases Patient Registry and the present study were approved by the Committee for Ethical Research of the Institute of Health Carlos III (CEI PI 74_2016 and CEI PI 58_2021-v2).
: Not applicable.
: The authors declare no potential conflicts of interest.
