Thompson, John L. P. https://orcid.org/0000-0002-5089-0967
Karaa, Amel
Pham, Hung
Yeske, Philip
Krischer, Jeffrey
Xiao, Yi
Long, Yuelin
Kramer, Amanda
Dimmock, David
Holbert, Amy
Gorski, Cliff
Engelstad, Kristin M.
Buchsbaum, Richard
Rosales, Xiomara Q.
Hirano, Michio
Funding for this research was provided by:
NINDS (U54 NS078059)
Article History
Received: 10 June 2022
Accepted: 4 June 2023
First Online: 22 June 2023
Change Date: 20 July 2023
Change Type: Correction
Change Details: A Correction to this paper has been published:
Change Details: https://doi.org/10.1186/s13023-023-02832-0
Declarations
:
: The survey, administered September-December 2018, was sent simultaneously to 1,265 RDCRN-NAMDC and 963 UMDF-MDCR registrants with email addresses. All participants gave consent and entered encrypted data online. Only their agreement to participate was recorded: their names and PHI were not collected. The protocol and survey procedures were submitted by the RDCRN Data Management and Coordinating Center (DMCC) (RDCRN# 7419) and approved by the IRB at the University of South Florida in Tampa, Florida.
: Not applicable.
: M. Hirano is supported by the Arturo Estopinan TK2 Research Fund, Nicholas Nunno Foundation, JDM Fund for Mitochondrial Research, Shuman Mitochondrial Disease Fund, and the Marriott Mitochondrial Disease Clinic Research Fund (MMDCRF) from the J. Willard and Alice S. Marriott Foundation. J. L. P. Thompson, A. Karaa, H. Pham, P Yeske, J. Krischer, Y. Xiao, Y. Long, A Kramer, D. Dimmock, A. Holbert, C. Gorski, K. M. Engelstad, R Buchsbaum, and X. O. Rosales report no competing interests relevant to the manuscript.