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Authors
Vallortigara, Julie
Greenfield, Julie
Hunt, Barry
Hoffman, Deborah
Reinhard, Carola
Graessner, Holm
Federico, Antonio
Quoidbach, Vinciane
Morris, Steve
Giunti, Paola http://orcid.org/0000-0003-3508-4788
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Funding
Funding for this research was provided by:
European Brain Council
Reata
Takeda Pharmaceuticals U.S.A.
Medical Research Council (MR/N028767/1)
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Article History
Received: 21 March 2023
Accepted: 4 September 2023
First Online: 17 October 2023
Declarations
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: In the UK the survey was submitted for ethical approval via the Integrated Research Application System (IRAS; reference 252966) and received approval by the Cambridge Research Ethics Committee (REC; reference 19/EE/0030). As part of this process all materials related to the survey, including the patient information sheets and final questionnaire, were validated by a clinical expert and an informal review panel including ataxia patients, nominated by Ataxia UK. For the two other countries, ethical approval for an anonymised survey was not needed.
: Not applicable.
: The authors have stated explicitly that there are no conflicts of interest in connection with this article.
