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Authors
Kenborg, Line https://orcid.org/0000-0002-3584-6570
Frederiksen, Line E.
Galanakis, Michael
Doser, Karoline
Nielsen, Thomas T.
Doherty, Mia Aagaard
Hove, Hanne
Østergaard, John R.
Handrup, Mette M.
Ejerskov, Cecilie
Mulvihill, John J.
Winther, Jeanette F.
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Funding
Funding for this research was provided by:
LEO Fondet (LF-OC-19-000088)
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Article History
Received: 21 September 2022
Accepted: 30 October 2023
First Online: 6 November 2023
Declarations
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: The study is part of the NF1 research program ‘Life with NF1’, which was approved by the Danish Protection Agency (Record 2014-41-2935). With reference to the EU General Data Protection Regulation (GDPR), the research project is listed in a local database (2018-DCRC-0012) at the Danish Cancer Society Research Center. The database provides an overview of ongoing research projects involving personal data under the GDPR and replaces the former notification from the Danish Data Protection Agency. As the individuals were not contacted during data collection, no consent to participate was needed.
: Not applicable.
: The authors declare that they have no competing interests.
