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Article History

First Online: 26 February 2024

Declarations

:

: Kavitha Devisetti (the author’s mother) agreed to be interviewed and have her story published in the OJRD. Ethics committee approval was not required.

: Informed consent was received to publish this article containing information about Kavitha Devisetti.

: Not applicable.

: Leisha Devisetti is an undergraduate student studying at the University of California, Berkeley. When her mother was diagnosed with ameloblastic carcinoma in June 2023, she experienced first-hand the adversities rare disease patients must face. Her family’s experience has augmented her passion for pursuing a career as a physician. She is interested in discovering ways of alleviating patient suffering. As such, while rare disease patients are often impacted in ways that we tend to overlook, Leisha hopes to share her family’s story to raise awareness about the reality behind rare conditions and advocate for positive change.