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Authors
Nagy, Amanda
Molay, Francine
Hargadon, Sarah
Brito Pires, Claudia
Grant, Natalie
De La Rosa Abreu, Lizbeth
Chen, Jin Yun
D’Souza, Precilla
Macnamara, Ellen
Tifft, Cynthia
Becker, Catherine
Melo De Gusmao, Claudio
Khurana, Vikram
Neumeyer, Ann M.
Eichler, Florian S. http://orcid.org/0000-0001-6836-1089
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Funding
Funding for this research was provided by:
Rare Diseases Clinical Research Network (1U54NS115052-01)
Massachusetts General Hospital
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Article History
Received: 11 April 2023
Accepted: 9 February 2024
First Online: 20 February 2024
Declarations
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: The study was approved by the Mass General Brigham Human Research Committee (Protocol #2020P003345). The need for written informed consent was waived due to the deidentified nature of the survey responses.
: Not applicable.
: The authors declare that they have no competing interests.
