Gizzo, Luciana
Bliss, Geraldine
Palaty, Chrystal
Kolevzon, Alexander http://orcid.org/0000-0001-8129-2671
Article History
Received: 15 October 2023
Accepted: 21 March 2024
First Online: 26 March 2024
Declarations
:
: By attending the November 8, 2022 EL-PFDD meeting, caregivers and family members of individuals living with PMS provided their consent to participate. They were informed at the time that some of their quotes, key insights and outcomes of the meeting would be published in a Voice of the Patient report.
: Not applicable.
: Alexander Kolevzon is on the Advisory Board for the Klingenstein Third Generation Foundation, Ovid Therapeutics, David Lynch Foundation, ADNP Kids Research Foundation, and Ritrova Therapeutics and consults to Acadia, Alkermes, CureSHANK, Jaguar Therapeutics, PYC Therapeutics, GW Pharmaceuticals, Neuren Pharmaceuticals, Clinilabs Drug Development Corporation, Scioto Biosciences, and Biogen.