van Dommelen, Paula https://orcid.org/0000-0001-5546-6244
van Dijk, OisÃn
de Wilde, Jeroen A.
Verkerk, Paul H.
Funding for this research was provided by:
Duchenne Parent Project (NA)
Article History
Received: 22 December 2023
Accepted: 5 May 2024
First Online: 10 May 2024
Declarations
:
: This research protocol (registration number: 2017-001) was submitted to the Nederlandse Organisatie voor toegepast-natuurwetenschappelijk onderzoek (TNO) Institutional Review Board (IRB). The IRB approved this non-interventional research proposal. In its deliberations, the IRB considered the research design and privacy aspects, in addition to the ethical aspects and the burden and the risks to the research participants. If parents and/or children (depending on the age of the child) agreed to participate, they were asked to provide written consent for collection of their health records, their date of diagnosis, and for publication of the results. We obtained permission from the Youth Health Care of The Hague to extract anonymous data from the electronic health records of all children born between 2011 and 2013 (control group).
: Not applicable.
: The authors declare that they have no competing interests.