Molnar, Maria Judit
Szabó, Léna
Vladacenco, Oana Aurelia
Cobzaru, Ana Maria
Dor, Talya
Dori, Amir
Papadimas, Georgios
Juříková, Lenka
Litvinenko, Ivan
Tournev, Ivailo
Dixon, Craig http://orcid.org/0009-0008-6957-5693
Funding for this research was provided by:
PTC Therapeutics
Article History
Received: 25 October 2023
Accepted: 1 July 2024
First Online: 9 July 2024
Declarations
:
: This study did not involve any direct contact with patients; the only direct human contact in the study were the authors/Steering Group. This does not require ethics committee approval and no identifiable patients were discussed during the meeting.The Steering Group was conducted in line with all relevant codes of conduct including ABPI, Data Protection Act, Market Research Society, and British Healthcare Business Intelligence Association (BHBIA).No patients were involved in this study.
: No patients were involved in this study.
: The authors (Steering Group)—Maria Judit Molnar, Léna Szabó, Oana Aurelia Vladacenco, Ana Maria Cobzaru, Talya Dor, Amir Dori, Georgios Papadimas, Lenka Juříková, Ivan Litvinenko, Ivailo Tournev and Craig Dixon—declare that they have no known competing financial interests or personal relationships that could have appeared to influence their work reported in this paper.The clinician respondents to the evaluation phase were paid a modest honorarium for the time taken to complete the questionnaire.