Crossmark

The physical, emotional, social, and functional dimensions of epidermolysis bullosa. An interview study on burdens and helpful aspects from a patients’ perspective

Crossref DOI link: https://doi.org/10.1186/s13023-024-03475-5

Published Online: 2025-01-06

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Salamon, Gudrun https://orcid.org/0000-0003-4249-5147
Strobl, Sophie

Matschnig, Marie-Stephanie

Diem, Anja
Funding

Funding for this research was provided by:

DEBRA Austria
License Information

Text and Data Mining valid from 2025-01-06

Version of Record valid from 2025-01-06
More Information

Article History

Received: 4 July 2024

Accepted: 20 November 2024

First Online: 6 January 2025

Declarations

:

: This study was performed in line with the principles of the Declaration of Helsinki. Ethical approval was granted by both the Medical and the Psychological Ethics Committees of the Sigmund Freud University Vienna (QBGJT4EPAFIS3D87492). Informed written consent was obtained by all participants or legal guardians of underage patients.

: Only pseudonymized data is used for publication. Participants gave written consent for the pseudonymized study results to be published in scientific publications.

: The authors declare that they have no competing interests.

Document is current

Any future updates will be listed below