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Authors
Jarvis, John https://orcid.org/0009-0002-9126-2534
Chertavian, Elizabeth
Buessing, Marric
Renteria, Taylor
Tu, Lufei
Hoffer, Lauren
Fischer, Ryan
Moore, Amanda
Cross, Meagan
Tones, Megan
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Funding
Funding for this research was provided by:
Foundation for Angelman Syndrome Therapeutics
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Article History
Received: 9 May 2024
Accepted: 11 January 2025
First Online: 21 February 2025
Declarations
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: Ethical approval to conduct this study was provided by Mater Research and the Global Angelman Syndrome Registry Governance Board, which oversees research access to de-identified registry data. Informed consent was obtained from all caregivers prior to initiation of the survey.
: Not applicable.
: JJ, EC, MB, TR, and LT are employees of Medicus Economics, LLC, which received consulting fees from the Foundation for Angelman Syndrome Therapeutics (FAST).
