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Authors
Liang, Wanxian
Cao, Shihuan
Suo, Yusi
Zhang, Lining
Yang, Lujia
Wang, Hanfei
Wang, Han
Jin, Xuejing
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Funding
Funding for this research was provided by:
China Alliance for Rare Diseases (China Alliance for Rare Diseases)
Beijing Society of Rare Disease Clinical Care and Accessibility (Beijing Society of Rare Disease Clinical Care and Accessibility)
Beijing Nova Program (Z211100002121060)
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Article History
Received: 17 May 2024
Accepted: 31 January 2025
First Online: 13 February 2025
Declarations
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: The study was approved by the Ethics Committee of Beijing University of Chinese Medicine (2022BZYLL1005) and was carried out according to the Declaration of Helsinki. Electronically signed informed consent was obtained before the survey began.
: Not applicable.
: XJ is a member of EuroQol Group Association. Other authors declare that they have no conflict of interest.
