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Authors
Merker, Vanessa L. https://orcid.org/0000-0002-4542-5227
Ma, Yidan
Chibnik, Lori B.
Radtke, Heather B.
Kelts, Kate
Yohay, Kaleb
Ullrich, Nicole J.
Plotkin, Scott R.
Jordan, Justin T.
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Article History
Received: 6 November 2024
Accepted: 19 March 2025
First Online: 16 April 2025
Declarations
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: This study was approved by the Western Institutional Review Board. All survey respondents provided voluntary informed consent to participate in the study and there was no compensation for participation.
: Not applicable.
: Ms. Kelts and Ms. Radtke are employees of the Children’s Tumor Foundation. Dr. Yohay has served as consultant and speaker for Alexion. Dr. Ullrich receives royalties from UpToDate, has received compensation for non-branded lectures for Alexion Therapeutics, and has provided expert testimony for Wolf, Horowitz & Etlinger, LLC. Dr. Plotkin is co-founder of NFlection Therapeutics and NF2 Therapeutics and has consulted for Akouos. Dr. Jordan has received consulting income from Alexion pharmaceuticals, Springworks pharmaceuticals, Shepherd Therapeutics, Navio Theragnostics, Magnet Biomedicine, Recursion Pharmaceuticals, Merck Pharmaceuticals, and Akeila Bio. He also has equity in Akeila Bio, Navio Theragnostics, and The Doctor Lounge. The remaining authors have no associations with commercial entities.
