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National Creutzfeldt–Jakob disease research biobank, a novel approach to the establishment of the scientific platform: collaboration between patient advocacy group, scientists, regulators and physicians

Crossref DOI link: https://doi.org/10.1186/s13023-025-03703-6

Published Online: 2025-04-10

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Anane, Alice

Pasternak, Doron

Reisner, Shimon A.

Novack, Victor https://orcid.org/0000-0001-8706-9622
Funding

Funding for this research was provided by:

Creutzfeldt-Jakob Disease Foundation (Creutzfeldt-Jakob Disease Foundation)
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Text and Data Mining valid from 2025-04-10

Version of Record valid from 2025-04-10
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Article History

Received: 4 June 2024

Accepted: 27 March 2025

First Online: 10 April 2025

Declarations

:

: The CJD Biobank was approved by the Soroka University Medical Center Ethics Committee: (Approval No: SOR-0137-18). All participants provided their informed consent.

: Not applicable.

: Alice Anane serves as chairperson of the Creutzfeldt–Jakob Israel Foundation.

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