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An underestimated factor for therapeutic decision-making in rare diseases: parents' (un)knowledge—the example of Duchenne muscular dystrophy caregivers and non-invasive ventilation

Crossref DOI link: https://doi.org/10.1186/s13023-025-03762-9

Published Online: 2025-06-05

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Wasilewska, Eliza https://orcid.org/0000-0002-5288-0586
Wasilewski, Andrzej

Pilarska, Ewa

Wierzba, Jolanta

Małgorzewicz, Sylwia

Niedoszytko, Marek
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Text and Data Mining valid from 2025-06-05

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Article History

Received: 5 November 2024

Accepted: 25 April 2025

First Online: 5 June 2025

Declarations

:

: The study was conducted in accordance with the Declaration of Helsinki, and approved by the Ethics Committee of Gdansk Medical University no. NKBBN/260/2021. All participants gave informed consent for the use of data for research purposes.

: Not applicable.

: The authors declare that they have no competing interests.

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