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Authors
Huynh, Sharon https://orcid.org/0000-0001-8379-4050
Wan, Eric L.
Pham, Angelette
Yoon, Robin
Dorris, Scott
Yazigi, Nada
Jones, Jessica M.
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Funding
Funding for this research was provided by:
National Organization for Rare Disorders
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Article History
Received: 27 February 2025
Accepted: 4 May 2025
First Online: 20 November 2025
Declarations
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: This study was approved by Georgetown University under IRB ID STUDY00006817 on 8 August 2023. All participants provided informed consent prior to their inclusion in the study, in accordance with the Declaration of Helsinki.
: All authors give their consent for this manuscript to be published by the Orphanet Journal of Rare Diseases.
: The authors declare no competing interests or other disclosures.
