Mirza, Adil
Rossi, Corinne
Kulozik, Andreas
Banan, Rouzbeh
Sahm, Felix
Harrabi, Semi
Syrbe, Steffen https://orcid.org/0000-0003-2543-4844
Choukair, Daniela
Funding for this research was provided by:
Medizinische Fakultät Heidelberg der Universität Heidelberg
Article History
Received: 1 December 2024
Accepted: 15 May 2025
First Online: 3 July 2025
Declarations
:
: Informed consent for individual off-label treatment with trametinib was obtained from the parents. Ethics approval does not apply to individual treatment decisions in Germany. Approval for off-label treatment and recommendations for surveillance and dosing were obtained from the pharmacological review board of Heidelberg University.
: Informed consent for publication of data and images was obtained from the parents.
: The authors have no conflicts of interest relevant to this article to disclose.