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Authors
Khan, Munira
Cassidy, Elizabeth
Parkin, Tracey
Wallace, Amanda
Carter, Bernie
Whitehouse, William
Munro, James
Paton, Joanne
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Bunn, Lisa https://orcid.org/0000-0002-7263-3048
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Funding
Funding for this research was provided by:
Action for A-T
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Article History
Received: 31 January 2024
Accepted: 11 July 2025
First Online: 4 August 2025
Declarations
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: Ethics approval was obtained from the Faculty Research Ethics and Integrity Committee at the University of Plymouth (2022–3756-4481). All children who participated in the focus groups provided assent and their parents and other parents who participated in the focus groups provided informed consent.
: All participants (and their parents in case of children) provided informed consent for publication of the study results using pseudonymised data.
: The lead researcher, Munira Khan, received a PhD studentship from Action for A–T to support the undertaking of this study. The authors declare that they have no competing interests.
