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Article History

First Online: 18 September 2025

Declarations

:

: Not applicable.

: All authors received honoraria from Kyowa Kirin International to present at the XLH Matters 2024 meeting. LS has received honoraria for lectures and advice from Alexion/AstraZeneca, Amgen, AM‑Pharma, BioMarin, Chiesi, Gedeon Richter, GlaxoSmithKline, Inozyme, Ipsen, Kyowa Kirin, Medi, Novartis, STADA Pharm, Theramex and UCB. He has also received grants for scientific projects from Alexion/AstraZeneca, Chiesi, Kyowa Kirin and Novartis. AL has received fees through her institution for a Phase I/II trial from Kyowa Kirin, and has also received honoraria from Alexion, Novo Nordisk, Ipsen and Pfizer International. ASA has received speaker fees from Kyowa Kirin. CAW has received honoraria from Kyowa Kirin and Medice, as well as collaboration fees from Bayer AG. DE was an employee of Lumanity and reported that Lumanity received payment from Kyowa Kirin International plc for the market research services. DF has received fees from Kyowa Kirin, Sandoz and Rhythm Pharmaceuticals. DH has received speaker and consulting fees from Amgen, Chiesi, Horizon, Kyowa Kirin and Ultragenyx. He has also received research grants from Amgen, Chiesi and Kyowa Kirin. HFJ has no additional conflicts of interest. JSB has received consultancy and/or speaker fees from Alexion, Amgen, Ipsen, Kyowa Kirin and Thornton Ross. LG has no additional conflicts of interest. MSC has received honoraria from Kyowa Kirin for taking part in advisory boards, delivering presentations and for funding of clinical staff for the rare bone service at Evelina London Children’s Hospital and Great Ormond Street Hospital. She has also been an investigator on trials for burosumab and the International XLH Registry, funded by Kyowa Kirin. NA has no additional conflicts of interest. PCR has received speaker fees from Kyowa Kirin. RFS has received consulting fees from Kyowa Kirin and QED Therapeutics. SSBN has received payments for invited speeches, consultancy and research grants from Kyowa Kirin, and has also been an investigator on the International XLH Registry, funded by Kyowa Kirin. She has also received payments for consultancy from Inozyme and Novo Nordisk.