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Authors
Smits, Rosanne M. https://orcid.org/0000-0003-2682-2654
Aerts, Aukje
Angelov, Teodor
Bentele, Marissa
de Blaauw, Ivo
Dellenmark-Blom, Michaela
Duijts, Saskia F. A.
Fjermestad, Krister
Franscini, Monica
Grano, Caterina
Hendriks, Sigrid
Inhestern, Laura
Kenny, Thomas
von der Lippe, Charlotte
Oomen, Loes
Rake, Jan Peter
Rietman, Andre B.
van Rooij, Iris A. L. M.
Verhaak, Chris M.
Voet, Nicoline B. M.
Walton, Holly
van Zelst-Stams, Wendy
Kwakkenbos, Linda
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Funding
Funding for this research was provided by:
European Joint Programme for Rare Diseases (EJP-RD)
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Article History
Received: 12 February 2025
Accepted: 25 August 2025
First Online: 27 October 2025
Declarations
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: This research did not involve sensitive personal data, as the primary goal of the workshop was to train ERN researchers and clinicians on relevant innovative topics with added cross-ERN value. Clinical trial number: not applicable.
: The participants consented for publication.
: The authors declare that they have no competing interests.
