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Authors
Pierce, Kristine https://orcid.org/0000-0003-2889-2381
Murphy, Jack Bernard
Robertson, Eden G.
Khan, Jahidur Rahman
Bullock, Susan
O’Loughlin, Cristol Barrett
Loden, Megan
McIntosh, Rebecca
Beavis, Erin
Roberts, Natalie
Palmer, Elizabeth Emma
Lingam, Raghu
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Funding
Funding for this research was provided by:
Epilepsy Foundation Australia
Maridulu Budyari Gumal
Dr Emil Kakkis
Stephanie Buscemi
National Health and Medical Research Council
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Article History
Received: 28 December 2024
Accepted: 8 September 2025
First Online: 21 October 2025
Declarations
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: This study was approved by the UNSW Human Research Ethical Committee (Reference: HC220624).
: Not applicable.
: CBO is the Founder and Chief Executive Officer of Raregivers Inc. The other authors declare no competing interests.
