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Authors
Hilberath, Johannes
Tsiflikas, Ilias
Sanders, Anna
Lieber, Justus
Luithle, Tobias
Haack, Tobias B.
Sturm, Ekkehard
Fuchs, Jörg
Warmann, Steven
Slavetinsky, Christoph https://orcid.org/0000-0001-5576-5906
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Funding
Funding for this research was provided by:
Universitätsklinikum Tübingen
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Article History
Received: 29 July 2025
Accepted: 18 November 2025
First Online: 12 December 2025
Declarations
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: The study was conducted in according to the ethical principles of the 1975 Declaration of Helsinki and approved by the Ethics Committee at the Medical Faculty of the Eberhard Karls University and at the University Hospital of Tübingen (reference 646/2023BO2). As decided by the ethics committee, informed consent including consent for publication was obtained from patients/caregivers who could be approached with reasonable effort.
: All authors reviewed the final version of the manuscript and provided written agreement for its publication in Orphanet Journal of Rare Diseases .
: The authors declare that they have no financial and/or non-financial competing interests.
