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Authors
Bocquet, Alexis
Bouillet, Laurence https://orcid.org/0000-0001-8245-4767
Hardy, Gaelle
Boccon-Gibod, Isabelle
Deroux, Alban
Arnaud, Mélanie
Pelletier, Fabien
Thanh, Aurélie Du
Ozanne, Nicolas
Armengol, Guillaume
Jeandel, Pierre Yves
Sailler, Laurent
Taquet, Marie Caroline
Launay, David
Fain, Olivier
Gobert, Delphine
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Article History
Received: 13 May 2024
Accepted: 21 November 2025
First Online: 2 December 2025
Declarations
:
: All patients signed a consent form for the genetic study to be carried out. We have followed the reference methodology for the processing of personal data in the context of research not involving the human person (MR-004): Written information was given to patients when their information was entered into the HAE with normal C1INH study. Oral consent was obtained.
: Not applicable.
: AB has consulted/ served as speaker for, engaged in research and educational projects with or accepted travel grants from the following companies: BioCryst, and Takeda. LB has consulted/ served as speaker for, engaged in research and educational projects with or accepted travel grants from the following companies: BioCryst, CSL Behring, Takeda and kalvista. GH has consulted/ served as speaker for Biocryst and takeda. GH has consulted/ served as speaker for Biocryst and takeda. IBG receipt of grants/research supports from Takeda, Biocryst, Pharming, CSL Behring, Pharvaris, Kalvista, Novartis. Receipt of honoraria or consultation fees from Takeda, Biocryst, Pharming, CSL Behring, Pharvaris, Kalvista, Novartis. AD: none. MA: none. FP: Receipt of honoraria or consultation fees from Takeda, CSL Behring; accepted travel grants from Biocryst. ADT: speaker and/or principal investigator or subinvestigator and/or expert for Biocryst and Takeda. NO accepted travel grants from Biocryst. GA: Receipt of honoraria or consultation fees and accepted travel grants from Takeda and Biocryst. PYJ: none. MCT: Receipt of honoraria or consultation fees and accepted travel grants from Takeda, biocryst, Amgen, Novartis. SG: None. LS: none. DL has consulted/ served as speaker for, engaged in research and educational projects with or accepted travel grants from the following companies Takeda, CSL Behring, Biocryst. OFain has consulted/ served as speaker for, engaged in research and educational projects with or accepted travel grants from the following companies: BioCryst, CSL Behring, Kalvista and Takeda. DGobert has consulted/ served as speaker for, engaged in research and educational projects with or accepted travel grants from the following companies: BioCryst, CSL Behring, Kalvista and Takeda.
