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Authors
Ruf, Hayley
Ireland, Colin J.
Pelentsov, Lemuel J.
Kopecki, Zlatko https://orcid.org/0000-0002-8072-4222
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Funding
Funding for this research was provided by:
Debra International (Debra International)
Dystrophic Epidermolysis Bullosa Research Association of America (Dystrophic Epidermolysis Bullosa Research Association of America)
Channel 7 Children's Research Foundation (Channel 7 Children's Research Foundation)
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Article History
Received: 25 March 2025
Accepted: 21 November 2025
First Online: 29 November 2025
Declarations
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: Ethical approval for this study was obtained from the University of South Australia Human Research Ethics Committee (#201982). Written informed consent was obtained from parents prior to their inclusion in the study.
: All study participants provided written informed consent for their data to be used and published in this study.
: ZK is a volunteer for DERBA Australia and DEBRA International in a non-financial capacity.
