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New pharmacotherapies for the erythropoietic protoporphyrias: an analysis of trial protocols from a patient perspective

Crossref DOI link: https://doi.org/10.1186/s13023-025-04170-9

Published Online: 2025-12-29

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Dechant, Cornelia https://orcid.org/0000-0003-1442-3824
Wäscher, Sebastian https://orcid.org/0000-0002-9657-4310
Granata, Francesca https://orcid.org/0000-0002-1115-3374
Gusset, Nicole https://orcid.org/0000-0002-5055-9342
Pettersson, Mårten https://orcid.org/0000-0001-8091-5101
Aksözen, Mehmet Hakan https://orcid.org/0000-0002-9434-6023
Höglinger, Marc https://orcid.org/0000-0003-2743-2199
Falchetto, Rocco https://orcid.org/0000-0003-3524-2141
Barman-Aksözen, Jasmin https://orcid.org/0000-0001-7272-8824
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Text and Data Mining valid from 2025-12-29

Version of Record valid from 2025-12-29
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Article History

Received: 8 May 2025

Accepted: 5 December 2025

First Online: 29 December 2025

Declarations

:

: Not applicable.

: Not applicable

: The authors declare that they have no competing interests