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Authors
Edouard, Thomas https://orcid.org/0000-0002-9222-5009
Bajanca, Fernanda
Flumian, Clara
Marion-Latard, Fabrice
Pradayrol, Clément
Guitarte, Aitor
Langeois, Maud
Van Kien, Philippe Khau
Yart, Armelle
Auriol, Françoise
Garrigue, Eric
Dulac, Yves
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Funding
Funding for this research was provided by:
MARFANS (na)
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Article History
Received: 12 February 2025
Accepted: 23 January 2026
First Online: 4 February 2026
Declarations
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: The study was conducted in compliance with the Good Clinical Practices protocol and Declaration of Helsinki principles. It was approved by a National Ethics Committee (CPP Est IV, 13 Mars 2018) and pre-registered at Clinicaltrials.gov under the number NCT03236571on the 28th July 2017.
: was obtained from all legal guardians as well as from the underaged participants, with additional written informed consent from one of the two legal guardians.
: The authors have no relevant financial or non-financial interests to disclose.
