Saraff, Vrinda https://orcid.org/0000-0003-3601-8942
Arango-Sancho, Pedro
Bacchetta, Justine
Boot, Annemieke M.
Burren, Christine P.
Chinoy, Amish
Dharmaraj, Poonam
Gómez Llorente, Maria Amelia
González Rodríguez, Juan David
Gueorguieva, Iva
Hayes, Wesley
Schnabel, Dirk
Duro, Héctor Ríos
Davies, Elin Haf
Komarzynski, Sandra
Rylands, Angela J.
Sandilands, Kerry
Ishii, Haruka
Williams, Angela
Selveindran, Santhani
Barlassina, Adele
Bowden, Annabel
Linglart, Agnès
Article History
Received: 4 September 2025
Accepted: 27 January 2026
First Online: 3 February 2026
Declarations
:
: The study complied with all applicable laws, regulations and guidance relating to adolescent protection, including privacy, and consistent with the ethical principles of the Declaration of Helsinki and the requirements of the European Union General Data Protection Regulation. Ethics approval was obtained from relevant authorities in each country. Adolescents provided either written informed consent or assent alongside carer consent to take part in different aspects of the study, depending on age and local requirements.
: No individual identifying data are included. Participant consent forms confirmed consent for the use of anonymized quotes.
: VS has received speaker fees, meeting attendance support and research fees from Kyowa Kirin, and support for meeting attendance from Alexion and Sandoz. JB has received speaker fees and research fees from Kyowa Kirin. AMB has received a research grant and consulting and speaker fees from Kyowa Kirin, all paid to her institution. CPB has received speaker fees and meeting attendance support from Kyowa Kirin. AC has received speaker fees from Kyowa Kirin. JDGR has received speaker fees from Kyowa Kirin and contributed to the company’s clinical reports. IG has received consulting fees and meeting attendance support from Kyowa Kirin and has taken part in an advisory board for the company; EHD holds stocks/stock options with Aparito Ltd and Eli Lilly& Co. WH has received a Research for Patient Benefit Grant from the National Institute for Health and Care Research. DS has received consulting fees and meeting attendance support from Kyowa Kirin and is president of the German Society for Pediatric and Adolescent Endocrinology and Diabetology. SK holds stock/stock options with Eli Lilly & Co. AJR , KS and AW are employed by Kyowa Kirin. HI is employed by Kyowa Kirin and holds stock in the company. AB is employed by Spire Outcomes Ltd, which received fees from Kyowa Kirin for evidence synthesis and medical writing. AL has received consulting fees and honoraria from Novo Nordisk, Merck, Biomarin and Pfizer; speaker and research fees from Kyowa Kirin (paid to her institution); and meeting attendance support from Sandoz. She has participated in advisory/data safety monitoring boards for Alexion and Novo Nordisk. PAS, PD, MAGL, HRD and SS have no disclosures.