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Authors
Mink, Jonathan W. https://orcid.org/0000-0002-7867-3710
Adams, Heather R.
Ahrens-Nicklas, Rebecca
Andersen, Brian Nauheimer
Augustine, Erika
Boustany, Rose‑Mary
Cooper, Jonathan D.
Levin, Alex
Gissen, Paul
Laine, Minna
Mason, Heather L.
Mole, Sara E.
Nickel, Miriam
Ostergaard, John R.
Sikorra, Lori
Treat, Lauren
Whiteman, Ineka T.
Williams, Ruth
Schulz, Angela
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Funding
Funding for this research was provided by:
Care Beyond Diagnosis (Care Beyond Diagnosis)
Amicus Therapeutics (Amicus Therapeutics)
Beyond Batten Disease Foundation (Beyond Batten Disease Foundation)
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Article History
Received: 22 April 2025
Accepted: 2 March 2026
First Online: 10 March 2026
Declarations
:
: Not applicable.
: Not applicable.
: Each author has completed the ICJME declaration forms, none of whichindicated any competing interests that may have influenced the validity ofthese guidelines. Copies of the completed ICJME forms are available uponreasonable request.
