Chan, Andrew
Kaempf, Monika
Löscher, Wolfgang N.
Vissing, John
Voerman, Johan
Frostell-Pyhäjärvi, Eva
Atula, Sari
Funding for this research was provided by:
Alexion, Rare Disease Company of AstraZeneca (Alexion, Rare Disease Company of AstraZeneca)
Article History
Received: 29 August 2025
Accepted: 6 March 2026
First Online: 20 March 2026
Declarations
:
: This research did not require ethical approval as it did not involve the collection of personal or sensitive data. Nevertheless, a compulsory informed consent declaration was included at the beginning of the questionnaire. Consent was considered implied through participants’ voluntary engagement and completion of the questionnaire.
: Not applicable.
: Medical writing support was provided by our colleagues at Cytel.
: AC has received speakers’/board honoraria from Alexion, Biogen, BMS, Genzyme, Horizon, Janssen/J&J, Merck KGaA, Novartis, Roche, Sanofi, Teva and UCB, all for hospital research funds. AC has received research support from Biogen, CSL Behring, Genzyme, Novartis and UCB, the European Union, and the Swiss National Foundation and serves as associate editor of the European Journal of Neurology, and on the editorial board for Clinical and Translational Neuroscience. WNL has received honoraria for presentations and/or advisory roles from Alexion, Argenx, UCB, Janssen, Amgen, Alnylam, Sanofi, Amicus, Lupin, Biogen and Roche and holds a research grant from Pfizer. JV has worked on advisory boards or received speaker honoraria from Roche, Regeneron, Toleranzia, Hansa Biopharma, Argenx BVBA, UCB Biopharma SPRL, Amgen, Dianthus Therapeutics, NMD Pharma, Alexion Pharmaceuticals, Novartis Pharma AG, Johnson & Johnson. SA has received speaker honoraria or served as a consultant on advisory boards for Alexion, ArgenX, Sanofi Genzyme, Biogen, UCB Pharma and Merck.