Pilo, Cinzia
Benedan, Laura
Morra, Valentina
M., El Hachem
Tadini, Gianluca
Annicchiarico, Giuseppina
Brena, Michela
Guez, Sophie
Lospalluti, Lucia
Mariani Wigley, Isabella L. C. https://orcid.org/0000-0003-0958-5124
Provenzi, Livio
Mariani, Paolo
Barello, Serena
Funding for this research was provided by:
Fondazione REB (QoL-REB)
Article History
Received: 16 October 2025
Accepted: 10 March 2026
First Online: 7 May 2026
Change Date: 8 February 2026
Change Type: Update
Change Details: The original version of this article was revised: Author first and last names were switched and tagged incorrectly. It is now: May El – first name; Hachem – last name. it should be: El Hashem – first name; M. – last names.
Change Date: 7 August 2026
Change Type: Correction
Change Details: A Correction to this paper has been published:
Change Details: https://doi.org/10.1186/s13023-026-04529-6
Declarations
Consent to participate: Only individuals (or caregivers of minors) who had previously provided consent to be contacted were invited to participate in the study. For participants under 18 years of age, consent was obtained from a parent or legal guardian, who completed the survey on their behalf.
Competing interests: The authors declare that they have no competing interests.