Document is current
Any future updates will be listed below
-
Authors
Desnuelle, Claude
Couratier, Philippe
Corcia, Philippe
Arcelin, Thelma
Nevoret, Camille
Duburcq, Anne
Baffert, Sandrine
Turgeman, Sabine
-
Funding
Funding for this research was provided by:
Association for Research on Amyotrophic Lateral Sclerosis and other Motor Neurone Diseases (Association for Research on Amyotrophic Lateral Sclerosis and other Motor Neurone Diseases)
- License Information
-
More Information
Article History
Received: 23 November 2025
Accepted: 13 March 2026
First Online: 31 March 2026
Declarations
:
: The study protocol was approved by the CESREES (Comité éthique et scientifique pour les recherches, les études et les évaluations dans le domaine de la santé), the National Data Protection Authority CNIL (Commission Nationale de l’Informatique et des Libertés) (reference PHT/POU/ AR2311493, 01/08/2023). According to CESREES and CNIL, a written informed consent was required for the study. The research complies with the guidelines for human studies and was conducted ethically in accordance with the World Medical Association Declaration of Helsinki.
: Not applicable.
: Not applicable.
: CD is vice-President of ARSLA and no COI to declare. P.Corcia and P.Couratier have no COI to declare. ST is an employee of ARSLA, which supported this study. SB, CN, ET and AD are CEMKA employees, who received grants from ARSLA to conduct this analysis.
