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Authors
El Hachem, May
Diociaiuti, Andrea http://orcid.org/0000-0003-0879-9825
Zambruno, Giovanna
Samela, Tonia
Ferretti, Francesca
Carnevale, Claudia
Linertová, Renata
Bodemer, Christine
Murrell, Dédée F.
Abeni, Damiano
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Funding
Funding for this research was provided by:
Ministero della Salute
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Article History
Received: 28 January 2024
Accepted: 7 April 2024
First Online: 19 April 2024
Declarations
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: The Ethical Committee of the Bambino Gesù Children’s Hospital (OPBG) approved the study of the Italian translation, cultural adaptation, and pilot testing of the QOLEB and EB-BoD questionnaires (Protocol number: 779/2023). All methods were performed in accordance with the ethical standards as laid down in the Declaration of Helsinki and its later amendments. All patients and caregivers signed informed consent and for participants below 18 years informed consent together with patient assent was obtained form a parent and/or legal guardian.
: Consent for publication of the clinical images was obtained from the patients or their parents.
: He authors declare that they have no competing interests.
