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Authors
Rees, Chris A. http://orcid.org/0000-0001-6449-0377
Brousseau, David C.
Cohen, Daniel M.
Villella, Anthony
Dampier, Carlton
Brown, Kathleen
Campbell, Andrew
Chumpitazi, Corrie E.
Airewele, Gladstone
Chang, Todd
Denton, Christopher
Ellison, Angela
Thompson, Alexis
Ahmad, Fahd
Bakshi, Nitya
Coleman, Keli D.
Leibovich, Sara
Leake, Deborah
Hatabah, Dunia
Wilkinson, Hagar
Robinson, Michelle
Casper, T. Charles
Vichinsky, Elliott
Morris, Claudia R.
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Funding
Funding for this research was provided by:
National Heart, Lung, and Blood Institute (5UH3HL148560, 1K23HL140142)
National Center for Complementary and Integrative Health (K24AT009893)
U.S. Department of Health and Human Services
Health Resources and Services Administration
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Article History
Received: 8 May 2023
Accepted: 25 July 2023
First Online: 17 August 2023
Declarations
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: A single institutional review board protocol for this trial was approved by the institutional review boards through a reliance at each participating center prior to any data collection. In the case of protocol modifications during the trial, approval will be sought from the institutional review board that provides regulatory approval and oversight for all sites for this trial (i.e., University of Utah institutional review board). Written permission from parents or legal guardians is required for participation for patients who are eligible for this trial and are aged < 18 years, which includes consent to access medical records. Additional consent is obtained for inclusion in the SCD-VOE biorepository.
: Not applicable—no identifying images or other personal or clinical details of participants are presented here or will be presented in reports of the trial results. The participant information materials and informed consent form are available from the corresponding author on request.
: The authors declare that they have no competing interests.
