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Article History

Received: 4 September 2023

Accepted: 5 July 2024

First Online: 16 July 2024

Declarations

:

: The study was approved by the Ethics Committees of the Universities of Newcastle (H-076-0795) and Queensland (2004000224). All participants provided written informed consent. In addition, linked administrative data have been provided by the following third parties: The Australian Government Department of Health and Aged Care, The Department of Veterans’ Affairs, ACT Health, NSW Ministry of Health, The Northern Territory Department of Health, Queensland Health, SA Health, The Department of Health, Tasmania, The Department of Health, Victoria, The Department of Health, Western Australia and The Population Health Research Network. For these linked data to be accessed through ALSWH, every data user must be added to the applicable Data Use Agreements and Human Research Ethics Committee (HREC) protocols. Over 80% of all ALSWH participants have explicitly consented to record linkage, ALSWH participants who decline health record linkage are excluded from linked data requests. Since 2005, the responsible HRECs have approved opt-out consent; in addition, a waiver applies to unconsented participants who were deceased or lost to follow up before 2005.

: Not applicable.

: The authors declare no competing interests.