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Authors
Schacht, Gabriel https://orcid.org/0000-0001-6513-5174
Elbracht, Miriam
Minder, Anna-Elisabeth
Stauch, Thomas
Stoppe, Arzu
Lausberg, Eva
Häusler, Martin
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Funding
Funding for this research was provided by:
Universitätsklinikum RWTH Aachen
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Article History
Received: 8 June 2024
Accepted: 16 January 2026
First Online: 23 February 2026
Declarations
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: The study was approved by the ethics committee of the medical faculty, RWTH Aachen (reference no. EK 24-066). Consent to participate was given by the patient’s parents.
: Written informed consent was obtained from the patient’s legal guardian for publication of this case report and any accompanying images. A copy of the written consent is available for review by the Editor-in-Chief of this journal.
: AEM had financial support for a porphyria nurse by Alnylam pharmaceuticals (2022–2023) and unrestricted research grant by Clinuvel pharmaceuticals (2019–2021), both paid to the Stiftung für wissenschaftliche Forschung Stadtspital Zürich. For the other authors, there are no financial and personal relationships with other people or organizations that could be viewed as inappropriate influence.
