Document is current
Any future updates will be listed below
-
Authors
Roberts, Jennifer Rhiannon https://orcid.org/0000-0002-8538-997X
MacLeod, Catherine Anne https://orcid.org/0000-0002-9314-7380
Windle, Gill https://orcid.org/0000-0003-0479-1172
Hoare, Zoe https://orcid.org/0000-0003-1803-5482
Stott, Joshua https://orcid.org/0000-0003-1361-053X
Sullivan, Mary Pat https://orcid.org/0000-0001-9514-0783
Camic, Paul M. https://orcid.org/0000-0002-4444-6544
Brotherhood, Emilie V. https://orcid.org/0000-0002-6244-7735
Crutch, Sebastian J. https://orcid.org/0000-0002-4160-0139
,
-
Funding
Funding for this research was provided by:
ESRC NIHR (ES/S010467/1, ES/S010467/1, ES/S010467/1, ES/S010467/1, ES/S010467/1, ES/S010467/1, ES/S010467/1, ES/S010467/1, ES/S010467/1)
- License Information
-
More Information
Article History
Received: 28 October 2024
Accepted: 3 April 2025
First Online: 15 April 2025
Change Date: 8 May 2025
Change Type: Update
Change Details: Following publication of the article, the layout of values in tables 1 and 2 has been corrected; please be referred to the current versions of the tables.
Declarations
:
: This research was conducted in accordance with the Declaration of Helsinki. The study received a favourable opinion from the Bangor University Healthcare Sciences Ethics and Research Committee (2023–17293), and is part of the wider RDS Impact Study, approved by the University College London Research Ethics Committee (8545/004: Rare Dementia Support Impact Study; Brotherhood et al., 2020). Informed consent was obtained from all subjects involved in the study: Participants were asked to proactively opt-in to proceed if they could confirm they were eligible to participate and that they consented to taking part.
: Not applicable.
: The authors declare no competing interests.
