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Article History

Received: 31 July 2018

Accepted: 29 November 2018

First Online: 3 January 2019

Authors’ information

: Louise Locock is Professor of Health Services Research at the University of Aberdeen and was previously Director of Applied Research, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford. Neil Churchill is Director for Experience, Participation and Equalities at NHS England. Jocelyn Cornwell is Chief Executive of the Point of Care Foundation, which provides training in patient-centred quality improvement. Gordon Sturmey and Lucy Brading are lay co-authors; Lucy Brading is also a PhD student. Susan Kirkpatrick is now an independent researcher (formerly University of Oxford). Glenn Robert is Professor of Health Care Quality & Innovation. Kings College London.

: The original interviews included in the secondary analysis were given approval by Berkshire Research Ethics Committee (09/H0505/66). Patients consented to be interviewed, and for their interviews to be a) disseminated online on Healthtalk and b) to be used additionally for secondary analysis, teaching and service improvement. This paper reports a patient and public involvement project, exploring involvement in qualitative data analysis and commenting on data already collected in the above interviews. University of Oxford institutional ethics guidance states that people who are “giving their views on research….do not count as “human participants” in the sense intended by CUREC’s [Central University Research Ethics Committee] policy. They are not giving you information about themselves, and the opinions they offer are not themselves the subject of research. You need not get ethical approval of your research if your contact with people is confined to this sort of interaction”. (FAQ A6).People who took part in the workshops did so as patient and public involvement partners, and were paid an honorarium for their time. They were given written information about the purpose of the workshops as well as verbal explanation and training.

: no personal data included.

: LL and GR have both taught on quality improvement training programmes run by JC and the Point of Care Foundation. GR is one of the originators of EBCD. Other authors declare that they have no competing interests.

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