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Article History

Received: 10 August 2021

Accepted: 12 November 2021

First Online: 25 November 2021

Declarations

:

: Eligible participants aged 18 years or over provided electronic informed consent after reading the online participant information sheet and indicating their consent by ticking a box. Ethics approval was not required because the research was non-interventional, and the participants were informed, consenting adults able to withdraw at any stage.

: AS reports interests from Springer Nature, personal fees from Patient Voice Initiative which receives multi-pharma sponsorship, and is an active member, Chair, of Health Technology Assessment International’s Patient and Citizen Involvement Interest Group. She also reports undertaking consultancy work in this field for government and industry. AC and SF have conducted research funded by AbbVie, AstraZeneca, Bristol Myers Squibb, CSL, GSK, Ipsen, Janssen, Novo Nordisk, Roche and UCB in the last 12 months. JT is employed by the Formosa Cancer Foundation, Taiwan. JYP is employed by Korea Kidney Cancer Association. She is also the director of the Korean Association of Patients Organizations. PH is the CEO of Lung Foundation New Zealand (LFNZ) which is funded primarily by peer-to-peer fundraising, donations (including bequests) and grants. Grants are used primarily to support programmes including the production of patient resources. LFNZ has received grants from Pourau and MSD.