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Article History

Received: 26 July 2021

Accepted: 13 January 2022

First Online: 2 February 2022

Declarations

:

: The key objective of this work was to conduct patient engagement and involvement work to gather strategic input into the medicine’s life-cycle impact framework. As such, people were not required to share personal experiences to achieve this aim and Ipsen’s Legal and Ethics & Compliance teams (at both global and relevant country levels) provided approvals for the study, fair market value reimbursement and documentation to be shared with participants including participant information sheet, consent form and interview discussion guide.

: Not applicable.

: OG owns Ipsen and GSK stocks. OG is a full-time Ipsen employee.PC owns Ipsen stocks and is a full-time Ipsen employee. RG received research grants from BMS, Exelixis, Merck, MSD, Novartis, Pfizer, Roche and declares no stock options. RG is employed by Medicom Medical Publishers in the Netherlands. MM is working as a freelancer (Director Service Agreement) for the World Alliance of Pituitary Organizations and declared no grants, consultancy fees and stock options. TK is employed by the International Neuroendocrine Cancer Alliance and declared no grants, consultancy fees and stock options. AC is working as a freelancer (Director Service Agreement) for the European Cancer Patient Coalition and declared no grants, consultancy fees and stock options. SB received consultancy fees from Ipsen, declared no research grants, and has no stock options. SB is employed by MediPaCe Ltd. CN received consultancy fees from Ipsen, declared no research grants, and has no stock options. CN is employed by MediPaCe Ltd.