Hainsworth, Emma https://orcid.org/0000-0003-3171-4201
McGrowder, Eva
McHugh, Jana
Bancroft, Elizabeth
Mahabir, Sean
Webber, Winston
Eeles, Rosalind
Cruickshank, Susanne
Funding for this research was provided by:
NIHR Biomedical Research Centre, Royal Marsden NHS Foundation Trust/Institute of Cancer Research (B115 (PPI grant))
Article History
Received: 21 December 2021
Accepted: 5 April 2022
First Online: 18 April 2022
Declarations
:
: The activities outlined in this publication classify as community engagement and involvement with research as opposed to being research. Therefore, ethics approval was not required. The PROFILE study was reviewed by the London-Chelsea Research Ethics Committee under reference number: 13/LO/1787 and was approved to be conducted in National Health Service (NHS) England by the Health Research Authority under reference number: IRAS132999. These approvals included activities to raise awareness. The PROFILE study participants who took part were approached by members of the clinical team and gave verbal or email consent to being approached by the authors and receiving further information about the involvement project. For members of the REACH staff forums at the Royal Marsden Hospital and the Institute of Cancer Research, the opportunity was advertised and circulated by internal communication and those who were interested contacted the authors. Video participants provided their written consent on a Royal Marsden NHS Foundation Trust media consent form on the day and filming took place with all the required Covid-19 safety precautions and social distancing was observed. All video participants received further reimbursement for their time and travel to the filming location according to the NIHR National Standards for Public Involvement [].
: Not applicable.
: The authors declare that they have no competing interests.