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Article History

Received: 30 March 2023

Accepted: 16 May 2023

First Online: 15 June 2023

Declarations

:

: Not applicable.

: Not applicable.

: The authors declare that they have no competing interest.

: AWK is a nurse and PhD Student at the unit of user perspectives and community-based interventions at the University of Southern Denmark. She currently focuses her work on patient and public involvement in health research.MJR is an Associate Professor in Diabetes Care, Patient and Public Involvement and Technology at Steno Diabetes Center Odense, Odense University Hospital and University of Southern Denmark. She is interested in diabetes care, clinical research and user involvement, and she is acknowledged within the scientific tradition of Participatory design in Health Science.MK is an Associate Professor in Pediatric Rehabilitation at the University Medical Center Utrecht and De Hoogstraat Rehabilitation in the Netherlands. Her research interests include family-centered services, and the role of the family in the development of children with disabilities. Involving patients and families in all stages and aspects of research is one of the key principles in her research.AKS is a patient partner in AWK’s PhD project. She is also a patient and relative representative at Odense University Hospital and a patient guest lecturer at University of Southern Denmark.KB is a patient partner in AWK’s PhD project and serves as a patient representative in several regional councils of Southern Denmark and at Odense University Hospital.KEB is a patient partner in AWK’s PhD project and serves as a patient representative in several councils at Odense University Hospital.TA is a partner in AWK’s PhD project and a patient and relative representative in various employment committees at Odense University Hospital. He also occasionally teaches new staff about the experiences of being a relative.MLK is a PhD student at University of Southern Denmark. She has a basic education as a trained nurse and a master’s degree in health sciences. Her research interest includes existential and spiritual care, missed nursing care and user involvement in healthcare research.AJ is a Professor in Patient and Public Participation at Utrecht University Medical Center, Utrecht University (Netherlands), and University of Southern Denmark. She is a health service researcher with a passion and longstanding commitment to issues of democratisation, participation and service user involvement in health research and health education. She holds honorary positions with Exeter University Medical School (UK) and Odense University Hospital (Denmark).