Baba, Ami
Richards, Dawn P.
Smith, Maureen
Pallone, Nicole
Vanderhout, Shelley
Prebeg, Matthew
Elsman, Ellen B. M.
Potter, Beth K.
Offringa, Martin
Butcher, Nancy J.
Funding for this research was provided by:
CHILD-BRIGHT Network
Canadian Institutes of Health Research (MYG-171684)
Article History
Received: 8 June 2023
Accepted: 25 September 2023
First Online: 30 September 2023
Declarations
:
: Research ethics approval was not required for this project as we worked with youth and parents in an advisory capacity.
: Not applicable.
: NJB declares consulting fees from Nobias Therapeutics, Inc. DPR is the owner of Five02 Labs Inc, which is under contract to Clinical Trials Ontario to support its patient and public engagement work. BKP leads the INFORM RARE research network, funded by a grant from the Canadian Institutes of Health Research (CIHR) with matching funds from public and private partners (informrare.ca/partnerships). All other authors declare that they have no competing interests.