Thomson, Alison
Horne, Rachel
Chapman, Christine
Bharadia, Trishna
Burke, Patrick
Colwell, Elizabeth
Harrington, Mark
Boskovic, Bonnie
Stennett, Andrea
Baker, David
Giovannoni, Gavin
Schmierer, Klaus
Funding for this research was provided by:
Horne Family Foundation
Roche (NCT04035005)
Biogen
Multiple Sclerosis Society of Great Britain & Northern Ireland
Merck Healthcare
Morris-Saady Charitable Trust (NCT04695080)
National Institute of Health and Care Research (17/145/09)
US National Multiple Sclerosis Society
Barts Charity
Article History
Received: 16 November 2023
Accepted: 18 May 2024
First Online: 18 June 2024
Declarations
:
: Online survey respondents received a link to the online survey, which informed them that completion of the electronic questionnaire implied that they had consented to participate in the survey.
: Not applicable.
: AT: AT has received research support from The UK MS Society, Roche and honoraria from Novartis and Merck. RH: RH is part of the Horne Family Foundation. CC: None.TB: None.PB: None.EC: None.MH: None.BB: None.AS: None.DB: DB has received honoraria for consultancy from Merck, Novartis, Teva and Sandoz.KS: KS has received research support, through Queen Mary University of London, from Biogen, Merck KGaA, and Novartis, Roche and Sanofi-Genzyme, speaking honoraria from, and/or served in an advisory role for, Biogen, EMD Serono, IGES UK, Merck KGaA, Novartis, Roche, and Sanofi-Genzyme and Teva; and remuneration for teaching activities from AcadeMe, Medscape and the Neurology Academy.GG: In the last two years, GG has received compensation for serving as a consultant or speaker for or has received research support from Aurinia Pharmaceuticals, Biogen, BMS-Celgene, GlaxoSmithKline, Janssens/J&J, Japanese Tobacco, Merck KGaA/EMD Serono, Moderna, Novartis, Sandoz, Sanofi and Roche/Genentech.
: AT is a design researcher and Senior Lecturer in PPIE at Queen Mary University of London. AT established and leads the Barts MS Patient Advisory Group and was the PI of the Under & Over study.TB is an MS patient advocate and thought leader who provided ongoing support and advice as an ambassador for the ThinkHand campaign, particularly around engagement with the MS community.CC lives with MS and is an Honorary Research Fellow (clinical trials patient communications) at the Blizard Institute.RH, PB, MH, EC and BB live with MS and contributed as members of the Barts MS Patient Advisory Group to the development of ThinkHand activities and writing of this manuscript.AS is a research neuro-physiotherapist at Barts Health NHS Trust and Honorary Clinical Lecturer at Queen Mary University of London and was involved in the Under & Over study.KS is a Professor of Neurology and consultant neurologist. He is a Deputy Director of Clinical Research at QMUL & Barts Health NHS Trust, the Neurology Research lead, and the clinical lead of BartsMS. KS is the chief investigator of ChariotMS.DB is a Professor of Immunology at Queen Mary University of London and is a frequent author of The MS Research Blog.GG is a Professor of Neurology and MS consultant neurologist and runs the MS Selfie website.